I’ve got a wonderful 10 year old daughter that is much like any other 10 year old. Her name is Nikki and she enjoys playing with Barbie and watching goofy movies. She fights with her siblings to no end and talks my ear off when she stumbles across something new and interesting. What makes her different? She has Vitiligo and it breaks my heart. She has had it since she was 5 years old.
We’ve gone through all of the treatment she could stand. The steroid creams, laser treatment and laying in natural sun light. Nikki got tired of it all and the lasers ended up causing painful “sun burns”.
Over the years we have kind of just not noticed it because we are used to seeing her and not her skin. However, when we go in public it’s a different story. Believe it or not adults are the worst. Their stares really piss me off. I expect it from children but not adults. Then there are the ignorant questions… “Did she get burned?” Really?! Last I checked it wasn’t anyone’s business. I couldn’t imagine myself going up to someone and asking what’s wrong with their child. Truth be told I did have some choice words for a lady in the grocery store one day because she couldn’t stop staring. Not very grown up of me but hey a mama bear protects her cubs.
In the beginning she would come home crying because of the kids at school teasing her or asking what color she is. She soon learned how to deal with it in her own way.
Not everyone is like that thou. Recently we were out and a lady whom I’ve never met before came up to me when my daughter was out of earshot and told me how beautiful she was. I truly appreciated her kind words.
Honestly I think Nikki’s Vitiligo upsets me more than her. She doesn’t let the way she looks stop her from doing anything. She loves gymnastics and plans on being an Olympic gold medalist. With her strong will and ability not to let other people get to her she can accomplish anything she puts her mind to.
Are there any other parents out there dealing with anything like this? If so, how do you deal with it? I would love to know.